Welcome back to my blog and even though it has been some time since I last wrote, I plan to be blogging more frequently, and I very much hope you enjoy what I have to say; so please feel free to share with others who may benefit from my words and perhaps leave me a comment as to what you would like to read.
In this blog, I would love to talk about the issue of losing your identity after stroke and specifically, the emotional side of stroke recovery. I was stirred to write this blog after receiving and reading a wonderful, insightful book about stroke identity (but I will come to that soon). Like many, I felt in the early days that my brain had been taken and replaced with one I did not want or even liked very much. I lost ‘me’ and so many parts of ‘me’ that I resented the person I was. My brain was slow and I had difficulty forming words and sentences. Bring on the depression and this made a great recipe for not being able to move forward with any form of positivity or focus. Does this resonate with my stroke survivor friends out there?
My brain worked in rhyme shortly after my stroke and this helped me enormously to deal with the emotions I was feeling; such as the frustrations, forgetfulness and often sad times I was going through. For those who have read some of my poetry from my book A Stroke of Poetry, one poem entitled: Who stole my brain? is a perfect example of some of the emotions I felt following my stroke and I know these feelings are experienced by many stroke survivors all over the world.
Perhaps this poem explains the seriousness of losing ‘me’ but a light-hearted touch upon the fact it is actually still OK to feel like this. As a Stroke Safe Ambassador, Motivational Speaker and passionate stroke advocate, I still campaign to have the voices heard of those who are struggling emotionally – what I refer to as one of the many invisible disabilities of stroke.
Now about this amazing book I mentioned and think we need a short drum role for the truly amazing Debra Meyerson and her recently published book Identity Theft – Rediscovering Ourselves After Stroke. I first connected with Debra, a former Stanford Professor, on Twitter some years ago, following her own severe stroke, as she was keen to conduct research with other stroke survivors. Many examples of those she has interviewed are featured in her book. Some, sadly, have not been able to accept their life changing stroke and thereby unable to move forward positively, but there are other examples of hope, inspiration and those who feel their stroke was meant to happen.
Debras story and her own stroke recovery is inspirational and this book was written to help others cope with the emotional part of any stroke recovery. It follows her severe stroke that left her physically incapacitated and unable to speak and covers in detail, the emotional journey of her recovery, including the fabulous, selfless support provided by her husband and children.
I had many tears reading this book as although I am lucky to have been left with no physical disability, my early stroke recovery identified so much with Debras words, emotions and ‘day to day’ feeling of being lost in a person you once were and is the first book where I truly felt connected to what I suffered. Debra was kind enough to send me additional books so if you feel this is something you would like to read, drop me a message and let’s share the love and inspiration from the amazing Debra E. Myerson PhD.
Thanks for reading and always be ‘stroke safe’
3 thoughts on “Losing your identity after stroke”
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Great blog thanks for sharing
Thanks Michele for taking the time to read it.